Casper was born September 26th/11 weighing 1lb 8oz 10 inches long. He faces many challenges including a very rare recessive genetic disorder called Fanconi Anemia, CP, GERD, FTT, Optic Nerve Hypoplaysia and has a feeding tube. Through it all he has been a charismatic little boy with a HUGE sense of style. I started this blog as a way of sharing his joyful personality and eclectic sense of style with the world as well as document our little miracles growth.